Sunday 31 January 2010
NOROVIRUS
Yesterday evening my husband and I went for a meal with friends. It had been booked some weeks before and we were all looking forward to it. Because of the length of time I have been ill and the fact that my immune system is so compromised, my friends know that if they have been ill they must telephone me straight away and then I will not see them until they are completely well. So you can imagine my horror when reaching the restaurant, that after the usual hugging and kissing, one of my friends loudly said that she had been unwell all week with Gastroenteritis! Being sick on Sunday and Monday with diahrrea(yesterday was Saturday) and ill enough to warrant a home visit from her GP as she had collapsed. Norovirus is still infectious upto 3 days from the disappearance of symptoms and she was still complaining of a sore tummy. I just didn't believe what I was hearing! If you have the norovirus you MUST STAY AWAY FROM IMMUNO COMPROMISED people for at least a week.
Wednesday 20 January 2010
CHRISTMAS 2009
I omitted to blog about Christmas. How could not have done???? Call it chemobrain.
Well, we managed to travel to North Wales to see our daughter, son-in-law and 2 granddaughters for a few days. It was a wonderful time for me....I'm not sure if anyone realised how much it meant to me to see my family. Now that I am so far along the CLL bench I always wonder when or if I will see them again. That's not being too emotional I think....it's just true. I love my daughter and granddaughters more than they would ever guess and time spent with them is very precious to me. Distance means we can't see them often but there isn't a day goes by without I don't think of them. I look forward to phone calls and emails and of course, I look forward to seeing them again soon. They are loved.
Well, we managed to travel to North Wales to see our daughter, son-in-law and 2 granddaughters for a few days. It was a wonderful time for me....I'm not sure if anyone realised how much it meant to me to see my family. Now that I am so far along the CLL bench I always wonder when or if I will see them again. That's not being too emotional I think....it's just true. I love my daughter and granddaughters more than they would ever guess and time spent with them is very precious to me. Distance means we can't see them often but there isn't a day goes by without I don't think of them. I look forward to phone calls and emails and of course, I look forward to seeing them again soon. They are loved.
Saturday 16 January 2010
DEPRESSION
A new year. A time I always thought of as being a new start with everything to look forward to.
But with the this disease......My last post shows I had been told there was no evidence of haemolysing (AIHA). Mmmmmmm. However, destruction of red cells continues. Yes, haemolysing has not gone away. My Prednislone dose had got down to 5mg and the pattern of the past year is that once at this dose for a couple of weeks, the destruction of the red cells starts again, which is what has happened. I have had a bone marrow biopsy this week (not the most pleasant of procedures) and depending on the result and discussion with the rest of the hospital team, I will learn on 1st February if I am to have my spleen removed. This, it is hoped, will help with my red cells.
I am tired of living with CLL and I am depressed. Ten years is a long time to be ill. I would like to book a holiday in the sun and go away and relax for a couple of weeks. But I don't feel well enough to travel far and travel insurance is a nightmare at the best of times. Travel Insurance.....maybe another topic here.
But with the this disease......My last post shows I had been told there was no evidence of haemolysing (AIHA). Mmmmmmm. However, destruction of red cells continues. Yes, haemolysing has not gone away. My Prednislone dose had got down to 5mg and the pattern of the past year is that once at this dose for a couple of weeks, the destruction of the red cells starts again, which is what has happened. I have had a bone marrow biopsy this week (not the most pleasant of procedures) and depending on the result and discussion with the rest of the hospital team, I will learn on 1st February if I am to have my spleen removed. This, it is hoped, will help with my red cells.
I am tired of living with CLL and I am depressed. Ten years is a long time to be ill. I would like to book a holiday in the sun and go away and relax for a couple of weeks. But I don't feel well enough to travel far and travel insurance is a nightmare at the best of times. Travel Insurance.....maybe another topic here.
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