Campath

I have been out of remission a year now and I have counted up how many times I have discussed my next treatment with various doctors. 14!!! Yes, 14!!!! Treatment ideas have swopped back and forth between FC, FCR, FCR + Luxillimab, Treanda + R, Chlorambucil + R, Campath with or without Rituxan. And so the choice has been made for me, for various reasons and it is Campath for the 2nd time. I don't know when but I know it will be soon. Where will I find the resources in me to mobilise myself for treatment 3 times a week? Three times a week doesn't sound much, but there is the travelling and then waiting to see the doctor, waiting for the Campath to arrive from the Pharmacy, waiting for a nurse to be free to administer the Campath and then waiting 2 hours after the Campath before I can go home. Since I have always felt the choice to be FCR or Campath, I was surprised my doctor chose Campath. He feels FCR is too toxic for me as FC gave me Sepsis the first time around. Campath was no picnic for me either, it gave me Pneumonia after 11 weeks of coughing, fevers and nausea.

I am still on the Prednisolone (5mg alt days) for AIHA and not feeling as well as I would like but the year coming out of remission has shown that my doctor was right, there was no need to rush into treatment. There has been more quality time than I expected.