I have AIHA (auto immune hemolytic anaemia) and it seems my white blood cells (and I have thousands of them) are killing my red cells as soon as they leave the marrow. This has to be got under control before I start any treatment. My doctors tell me that they want to schedule treatment for the first week in January which is only a few weeks away. The problem is which treatment shall I have? I am inclined to try Campath again to hit the high white cell count and then Rituximab but as I use a UK hospital, maybe funding could be a problem.
It is my 61st birthday on Monday and I will be at the hospital! Then again on Wednesday at the Royal Marsden in Surrey. How I do see life and know how to enjoy myself!
I am having steroids to help with the AIHA which meant I spent yesterday in a heap of tissues. Feeling better today thank goodness. Fancy not being able to celebrate your birthday with a small glass of wine........ Maybe I'll just smell it :-)
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"The breeze at dawn has secrets to tell you.
Don't go back to sleep".....
Rumi Poem 'Across the Door Sill'
Thoughts from a CLL patient
Go with the flow. You can't stop the current, so enjoy yourself and don't let anything hold you back'.
Worry is like a rocking chair - it gives you something to do, but it doesn't get you anywhere.
'I think you go on dancing til the lights are turned out. Then you're dancing in the dark, and that's fine, until you come back into the light again'.
Joanna Lumley
Joanna Lumley
'You can't regret any minute of your life. You've just got to keep going'.
"The breeze at dawn has secrets to tell you.
Don't go back to sleep".....
Rumi Poem 'Across the Door Sill'
We turn not older with years, but newer everyday.
Emily Dickinson
Emily Dickinson
Who are you?
First you are you,
and then you are middle-aged,
then you are old,
then you are wonderful!
Lady Diana Cooper
and then you are middle-aged,
then you are old,
then you are wonderful!
Lady Diana Cooper
How to LIVE
Life should not be a journey to the grave with the intention of arriving safely in an attractive and well-preserved body, but rather to skid in > sideways, Chardonnay in one hand, body thoroughly used up,> totally worn out and screaming:
'WOO HOO....what a ride!'.......
anon
'WOO HOO....what a ride!'.......
anon
Words to Meditate on
Panic is a projection that is not real. We are not just our fears. Our fears to not necessarily determine our future. This is significant.....Greg Anderson
Keep dreams alive for when they die, life is a bird with a broken wing. It cannot fly......unknown
I am too busy trying not to die that I forget how to live...unknown
What the caterpillar calls the end of the world, the Master calls a butterfly....Richard Bach
Keep dreams alive for when they die, life is a bird with a broken wing. It cannot fly......unknown
I am too busy trying not to die that I forget how to live...unknown
What the caterpillar calls the end of the world, the Master calls a butterfly....Richard Bach
Begining of a New Day
This is the beginning of a new day.
God has given me this day to use as I will.
I can waste it or grow in its light
and be of service to others.
But what I do with this day is important
because I have exchanged a day of my life for it.
When tomorrow comes
today will be gone for ever. I hope I will not regret
the price I paid for it.
author unknown
God has given me this day to use as I will.
I can waste it or grow in its light
and be of service to others.
But what I do with this day is important
because I have exchanged a day of my life for it.
When tomorrow comes
today will be gone for ever. I hope I will not regret
the price I paid for it.
author unknown
Followers
About Me
- soapy
- I want to stay anonymous and use my blog as a way of releasing feelings and also sharing with others.
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